Upon departure, Thompson thanks HD community for determination
Sean Thompson introduces "The Lion's Mouth Opens" HD documentary at the University of Iowa on Jan. 29, 2015 (photo by Owen Wade)
Expansion to weekly HD Clinic to serve more patients
To meet the growing needs of the Huntington disease community in Iowa and beyond, the UI HDSA Center of Excellence’s Huntington disease Clinic is expanding to take place each week. This expansion mean...
Access to disability benefits to improve thanks to updated Huntington disease criteria
By Sean Thompson
Minion will remember the people from her four years as UI HDSA COE student staff
Hannah Minion started working with her older sister at the UI HDSA COE as a freshman (photo by Owen Wade)
New social worker Dominguez providing help and hope for HD families
Angel Dominguez, the new UI HDSA COE social worker, wants to end each day at work knowing that she made an impact, no matter how big or small (photo by Owen Wade)
UI senior finds her courage being face-to-face with Huntington disease
UI HDSA COE Student Editorial Assistant Emmy Szymanski plants blue flags on the lawn of the University of Iowa Pentacrest for an HD Awareness Month display.Editor’s note: On her last day working at t...
Miller departing as UI HDSA COE social worker
Amanda Miller is departing for a new challenge as program director for a forthcoming UI mood disorders clinic
Law enforcement trainings to lay groundwork for proper treatment of people with HD, other diseases
UI HDSA COE Social Worker Amanda Miller presents general information and details on how to identify HD symptoms to law enforcement and first responders in Altoona.
HD Awareness Month recognized with several campus events
The UI HDSA COE is recognizing HD Awareness Month in May.
Hayes empowered by research participants, colleagues to do things bigger than himself
Hayes, a research assistant at the UI HDSA COE since August, says he wants to do whatever he can within the research world and as an advocate to help those in the HD community. (photo by Owen Wade)
No chance “Rules for 50/50 Chances” would have been about anything other than HD, McGovern says
A writing instructor and mentor once told author Kate McGovern to “write about the things you obsess over.” So when it came time to start typing the nascent letters on the keyboard that would form the...
A Q&A with self-described "New Girl" and new research assistant Emily Shaw
Emily Shaw joined us as a new research assistant this fall. Find out more about her with this Q&A.Click here to read a profile article about Shaw.
Risk of Huntington disease compounds teenage uncertainty in “Rules for 50/50 Chances”
The following is a book review of the novel "Rules for 50/50 Chances" by Kate McGovern, released Nov. 24, 2015.
Testing for HD means gaining control of her future for at-risk UI HDSA COE student employee
UI senior Emily Szymanski wants to be a champion for HD families and help find a cure for HD through her work at the UI HDSA COE (photo by Owen Wade).
Life after college for Shaw means helping people every day as research assistant
A 2015 graduate of the University of Iowa, Emily Shaw is settling in to her role both as a research assistant and within the HD community. (photo by Owen Wade)
Family planning options for HD-free kids: Adoption and donors
By Shawna Feely, MS, CGCUI HDSA COE Genetic Counselor, andCarly Siskind, MS, LCGCStanford School of Medicine, Neuromuscular Disorders Program
Family planning options for HD-free kids: Prenatal and preconception options
By Shawna Feely, MS, CGCUI HDSA COE Genetic Counselor, andCarly Siskind, MS, LCGCStanford School of Medicine, Neuromuscular Disorders Program
Shedding light on the darkness of her genetic fate
Jamie Parish uses a positive, proactive approach to living gene positive for Huntington disease (photo by Owen Wade) By Christina Colletta
"The Lion's Mouth Opens" at UI screening to over 400 attendees
A full house saw the UI HDSA COE's Jan. 29 screening of "The Lion's Mouth Opens" in the Pappajohn Business Building on the UI campus.
Free Jan. 29 “The Lion’s Mouth Opens” Huntington disease documentary screening
Palka seeks Huntington disease fate with courage, strength in permeating “The Lion’s Mouth Opens”
In “Twitch,” Powers explores genetic testing and learning her Huntington disease fate
From Iowa to Washington D.C., advocating on behalf of those affected by Huntington disease
On July 15 and Sept. 22-23, 2014, members of the Huntington’s Disease Society of America National Youth Alliance headed to Capitol Hill to urge their members of congress to co-sponsor the Huntington’s...
Free Oct. 2 “Twitch” Huntington disease documentary screening and lecture
What: Screening of “Twitch” documentary Date: Oct. 2 (Thursday), doors open at 6:30 p.m. screening begins at 7 p.m. (film run time 45 minutes) Location: Seamans Center (map), Room 1505 (first floor au...
Huntington disease fundraising efforts are off and running with Team Run for HD
By Christina Colletta
Summer intern looking forward to engaging, furthering HD cause through communications
By Christina Colletta
Free “Alive and Well” Huntington disease documentary screening May 14
As part of our May 2014 Huntington’s Disease Awareness Month activities, please come join us for a FREE screening of the documentary Alive & Well at the Iowa Memorial Union’s Iowa Theater (former Bijo...
HD Support Group offers more than meets the eye
By Amanda Miller UI HDSA COE Social Worker
Luther recognized as one of UI’s Student Employees of the Year
The UI Huntington’s Disease Society of America Center of Excellence’s Jolene Luther, a senior from Belgium, Wis., has been named a 2014 Student Employee of the Year Certificate of Appreciation winner,...
A night of hockey for HD: Fundraiser set for Iowa Wild game
Amid slap shots and faceoffs, you can help the HDSA Iowa Chapter raise funds and awareness for HD by attending the Iowa Wild hockey game Friday, Jan. 31 in Des Moines.
From behind the scenes to by participants’ side
By Sean Thompson UI Huntington's Disease Society of America Center of Excellence Public Relations Coordinator
Happy to make a difference
Bella De Soriano is our newest research associate, on the job since September. Find out more about her with this Q&A, and click here to read a profile article about De Soriano.
Fellowship provides immersion in HD research
By Jolene Luther Huntington's Disease Society of America Donald A. King Summer Research Fellow
Always looking out for her research participants: In her work and upon her retirement, Pat Ryan kept participants as top priority
By Jolene LutherUI HDSA COE Public Relations Assistant
Help UI HDSA COE raise money for HD patient care through shopping
By Jolene Luther
In her own words: Ryan bids farewell
University of Iowa Huntington’s Disease Society of America Center of Excellence Research Associate and PREDICT-HD Coordinator Pat Ryan retired in August after over five years working here. In her own ...
Summer Intern Connects with HD Community, Becomes Dedicated HD Advocate
By Sarah Petitt
Driven from Her Heart to Research Fellowship: A special bond with her grandfather leads UI student to conduct Huntington disease research
Story by Sean ThompsonPhotos by Owen Wade
Through Social Work, Miller Aims to Help Those in Need
The following is an extended version of an article appearing in the Spring 2013 issue of HIND-Sight.
May is Huntington's Disease Awareness Month
May is Huntington's Disease (HD) Awareness Month, and The University of Iowa Huntington's Disease Society of America (HDSA) Center of Excellence is working to raise awareness of this devastating neuro...
Hoop-A-Thon to Benefit Huntington Disease on April 6
The University of Iowa Huntington’s Disease Society of America Center of Excellence is helping to organize the 2013 Huntington’s Disease Society of America Cedar Rapids Hoop-A-Thon fundraising event, ...
Paulsen Named Roy J. Carver Chair in Neuroscience
Jane Paulsen, PhD, professor of psychiatry, neurology, psychology and neurosciences, has been named the Roy J. Carver Chair in Neuroscience.
Pennsylvania Girl Raises Money for a Rare Juvenile Disease
Nine-year-old Virginia Buck does not ask for much for herself. In fact, the only thing she really asks is that you try and understand what she and other kids like her are going through. Virginia is li...