News & Events

NewsWe are pleased to announce that registration for the Iowa Wellstone Muscular Dystrophy Cooperative Research Center 2019 Dystroglycanopathy Patient and Family Conference is now open!

The conference is free for all attendees and will be held at the Coralville Marriott Hotel and Convention Center on June 22, 2019



All conference attendees must be registered by May 31, 2019. Link to registration form:

https://centerforconferences.uiowa.edu/dystroglycanopathies-2019-patient...

Link to hotel registration: Book your group rate for UI Wellstone Muscular Dystrophy Conference.

Reserve your room by May 31, 2019 to receive the group rate ($115/night).

If you plan to participate in the natural history study (Clinical Trial Readiness for the Dystroglycanopathies) and you are a new patient, please contact Carrie Stephan carrie-stephan@uiowa.edu/ 319-356-2673) for additional information.

2019 Conference Materials

PDF iconMuscular Dystrophy Life Hacks

Conference documents below—Please review carefully!

Conference Information-this guide contains important information and will answer many of your questions!

Hotel/Motel Guide-detailed information on hotel accommodations in the area.

Travel Reimbursement information (for natural history study participants)

PDF iconConference Information2019.pdf

PDF iconTravel Reimbursement 2019.pdf

FileHotel Visit Spreadsheet.2019.xlsx

 

Previous Events:


2018 Dystroglycanopathies Patient and Family Conference: July 13-14 in Iowa City/Coralville

Conference Talks

Dr. Kathy Mathews - PDF icon"Introduction to Dystroglycanopathies"

Dr. Jeff Chamberlain - PDF icon"A Roadmap for Bringing FKRP Gene Therapies into Clinical Use"

Dr. Julie Christensen - PDF icon"Tips and Tools to Engage in Public Policy Advocacy"

We are pleased to announce that registration for the Iowa Wellstone Muscular Dystrophy Cooperative Research Center 2018 Dystroglycanopathy Patient and Family Conference is now open!

The conference will be held at the Coralville Marriott Hotel and Convention Center on July 14, 2018.  

Please review the attached Registration Information prior to registering for the conference. All conference attendees must register.

Natural History study participants should also review the Travel Reimbursement information.

Register via the following link: https://centerforconferences.uiowa.edu/2018-dystroglycanopathies-patient-and-family-conference

We hope to see you this summer!

PDF iconRegistration Information

PDF iconTravel Reimbursement

View an introduction to the dystroglycanopathies

2017 Dystroglycanopathies Patient and Family Conference: August 18-19 in Iowa City

For more information, click the following links:

PDF icon2017 Conference Program

PDF icon2017 Schedule of Events

PDF icon2017 Travel Reimbursement Information

PDF icon2017 Registration Form

PDF icon2017 Hotel Accessibility Guide

2016 Dystroglycanopathies Patient and Family Conference: August 5-6 in Iowa City

Event contact: Carrie Stephan (carrie-stephan@uiowa.edu or 319-356-2673)

2015 Dystroglycanopathies Patient and Family Conference: August 14-15 in Iowa City

2014 Dystroglycanopathies Conference: July 18-19 in Iowa City

For more information, click the following links:

Event contact: Carrie Stephan (carrie-stephan@uiowa.edu or 319-356-2673)

See below for presentations from the conference:  

2013 Dystroglycanopathies Conference: July 19-20 in Iowa City, IA 

For more information, click on the following links:

See below for information from the conference:

2012 Dystroglycanopathies Conference: August 17-18 in Iowa City, IA

For more information, click on the following links:

See below for handouts of presentations from the conference:

2011 Dystroglycanopathies Conference: June 9-11 in Iowa City, IA 

For more information, click on the following links:

UPDATE: See below for handouts from the conference