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Save the Date: Saturday-Sunday, July 17-18, 2021

The Dystroglycanopathies: 2021 Iowa Wellstone Center Patient and Family Conference

Due to the enthusiasm for an in-person conference, we hope to host a hybrid meeting with options for attending in-person or virtually via Zoom. A final decision regarding hybrid vs. virtual-only meeting will be made by the end of April.
In keeping with University of Iowa guidelines:

  • The number of in-person attendees will be limited.
  • Supervised play for children will not be provided if we host in-person.
  • Teen sessions will be held entirely via Zoom.

Registration details to follow later this year.
Questions? Contact Carrie Stephan at 1-319-356-2673 or carrie-stephan@uiowa.edu
Review and download our Save the Date Announcement

Research Appointments:

Participation in Wellstone study visits are greatly appreciated  and vital to our research. If we are not able to host an in-person conference, we will hold two Saturday clinics for small groups of participants to complete yearly research exams.