Program Listing

Child Health Specialty Clinics

The mission of the Child Health Specialty Clinics (CHSC) program is to improve the health, development and well-being of children and youth with special health care needs in partnership with families, service providers, communities and policy makers. CHSC serves children and youth from birth to 21 years of age who live in Iowa and who have a chronic condition (physical, developmental, behavioral, or emotional) who have an increased risk for a chronic condition and who have a need for special services.

Statewide Perinatal Care Program

The Statewide Perinatal Care Program provides training for health care professionals; development of evidence-based guidelines and standards of care; consultation to regional and primary providers; evaluation of the quality of care delivered to reduce the mortality and morbidity of infants; ongoing education for patients in all communities to receive the highest level of care within their communities.

Iowa Newborn Metabolic Screening Program

The Iowa Newborn Metabolic Screening Program was developed to screen Iowa newborns for congenital and inherited disorders. Iowa is a national leader in newborn screening with 29 disorders included in screening.

Iowa Metabolic Food/Formula Program

The Iowa Metabolic Food/Formula Program was developed to assist Iowans diagnosed with specific inborn errors of metabolism.

Regional Genetics Consultation

The purpose of the Regional Genetics Consultation Service is to promote health, prevent disease, reduce the incidence of congenital disorders and improve outcomes for those with congenital defects and genetic disorders. The program has held over 2,400 clinics and more than 23,500 patient/family visits over the past 33 years.

Iowa Neuromuscular Program

The Iowa Neuromuscular Program ensures access to comprehensive health care services for children, adults and families with a wide variety of neuromuscular and related disorders throughout Iowa. The program addresses complex and difficult needs of one of Iowa's most vulnerable populations.

Rural Hemophilia Program

The Rural Hemophilia Program provides comprehensive, community-based support and care coordination for children with special hemophilia needs in the state. It provides the referring physician with the diagnosis and an extensive clinical care plan.  The program also serves as a consultant/point of contact to the community physician when the patient is in need of invasive procedures, such as surgery or dental care. Continuous consultation with local providers and caregivers is essential to maintain care for the patient in the local community.

Comprehensive Cancer Program

The Comprehensive Cancer Program provides community-based care coordination for pediatric patients diagnosed or at risk for cancer. Following referral, diagnosis and treatment planning, a team of hematology-oncology specialists develop and integrate a clinical care protocol that can be delivered in the patient's community.

High Risk Infant Follow-up Program

The purpose of the program is to identify the developmental and special health needs of infants at risk. Early detection and educational service is offered to families with babies who were ill as newborns and require special care after their births. The program initiates referrals to appropriate state agencies, offers support for parents, facilitates use of community resources.