HD Awareness Month recognized with several campus events

Thursday, April 28, 2016


HD Awareness Month Hannah and Taylor2
The UI HDSA COE is recognizing HD 
Awareness Month in May.

This May during globally-recognized Huntington’s Disease Awareness Month, the University of Iowa Huntington’s Disease Society of America Center of Excellence has planned a series of events to help spread awareness on campus about the neurodegenerative disorder Huntington disease (HD).

We welcome anyone to check out these events and displays, share on social media using #HDAwarenessMonth, wear blue shirts around town in honor of HD awareness, and help us spread the word about HD in May.


HD Awareness Month events and displays

Pentacrest lawn blue flag display
When: Monday, May 2
Where: Pentacrest west lawn 
Description: We will spell out “HD” with blue flags and pinwheels in the ground in order to raise awareness.

HD Awareness Swing Dance Lindy Bomb
When: Tuesday, May 3, 7 p.m. – 9 p.m.
Where: Downtown Iowa City Ped Mall (by the Sheraton/playground/fountain/Iowa City library)
Description: The UI Swing Dance Club is helping to raise HD awareness with a Lindy Bomb. What’s a Lindy Bomb? It’s a semi-impromptu gathering (think flash mob) of people who go out in public and swing dance! Feel free to swing by and dance with us or just watch! Don’t forget to wear blue to support HD awareness! 

Lighting the Iowa Memorial Union blue
When: Monday, May 9 – Wednesday May 11, after dark
Where: Iowa Memorial Union window lights above the N. Madison St. entrance
Description: The lights on the big 2nd/3rd floor window facing N. Madison St. will light up the IMU blue for HD Awareness Month! Check it out and feel free to share a photo on social media using #LightItUp4HD.

Chalking for HD Awareness
When: Wednesday, May 4 – until rain washes it away!
Where: T. Anne Cleary sidewalk between Jefferson and Market streets
Description: We’re paving the way to greater HD awareness with some chalk messages on the on the T. Anne Cleary walkway!

HD Awareness Month info table
When: Tuesday, May 10, 11 a.m. – 2 p.m.
Where: Kautz Plaza (on the T. Anne Cleary Walkway between Calvin and Trowbridge Halls)
Description: Stop by grab a free freeze pop and pinwheel (while supplies last) and learn more about HD! We will have a table set up with HD info cards and our staff to answer any questions about HD.

HDSA Iowa Chapter Education Day
When: Saturday, May 21, 9 a.m. – 4:30 p.m.
Where: Holiday Inn Des Moines Airport, 6111 Fleur Drive, Des Moines
Description: Hear from presenters from the University of Iowa HDSA Center of Excellence and other HD experts on the latest research findings, nutrition, advocacy, genetic testing and other topics relevant to all members of families affected by HD. Click here to register for this free event organized by the HDSA Iowa Chapter.

About Huntington disease

Huntington disease is a fatal genetic neurodegenerative disorder that is commonly described as a combination of Alzheimer disease, Parkinson disease, and ALS. HD deteriorates a person’s physical and mental abilities during their prime working years. Every child of a parent with HD has a 50-50 chance of inheriting the disease. 

Today, approximately 30,000 Americans have HD while over 200,000 are at risk for developing this disease. Although there is currently no cure for HD, research at institutions like the UI HDSA Center of Excellence are leading to helpful findings on the disease that might one day lead to effective treatments or a cure.

For more information, please contact Sean Thompson at (319) 384-4094 or sean-thompson@uiowa.edu

Individuals with disabilities are encouraged to attend all University of Iowa-sponsored events. If you are a person with a disability who requires an accommodation in order to participate in these programs, please contact Sean Thompson in advance at 319-384-4094.